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The Importance of Caring for Caregivers
 

At Lee Memorial Health System, we are a very strong supporter of patient- and family-centered care.

We know that it is just as important to help friends and family members understand a patient’s health concerns as it is to ensure that the patient understands. This provides peace of mind for everyone involved and helps prepare a patient’s loved ones, who will very likely become the caregivers of the patient.

Being a caregiver to someone—especially someone you love—is a huge responsibility. I speak from personal experience. As some of you may recall in my column from last week, I referred to my mother and myself as “professional caregivers.” My father had many health issues throughout his lifetime, and my mother and I spent hundreds of hours taking him to doctor’s appointments, staying with him in the hospital and caring for him at home.

Our health system provides many opportunities to involve friends and family members in a patient’s care, such as inviting loved ones to participate when our multi-disciplinary teams make their daily rounds in our Intensive Care Units. Our All-Star Total Joint Center also encourages patients to have a friend or family member present during group physical therapy.

We provide many opportunities for caregivers to receive care, as well. Our Regional Cancer Center makes many of its programs and support groups available to friends and family members of patients, and our Older Adult Services department co-sponsors a “Smell the Roses” event each year to provide relaxation and rejuvenation opportunities for those caring for loved ones. Our health system also has support groups for caregivers.

Our ALS Clinic is another program that focuses heavily on the involvement of loved ones. ALS, which is also called amyotrophic lateral sclerosis or Lou Gehrig’s disease, is a degenerative disease of the nerves in the brain and spinal cord that control voluntary muscle movement. The disease eventually causes a person to be unable to perform routine tasks, such as getting up from a chair or brushing one’s teeth. That means patients come to depend very heavily on their caregivers.

The ALS Clinic at the Outpatient Center at Plantation provides neurologists, physical therapists, occupational therapists, a respiratory therapist, a nutritionist, a speech pathologist and social services for patients, as well as support for caregivers. And it is making a huge difference for patients and families.

Here is an excerpt from an e-mail sent to the Florida Chapter of The ALS Association, regarding our ALS Clinic:

First God bless you all!!

My wife and I are local caretakers for [a patient] diagnosed with ALS in January 2010…We were all totally incapable of an intelligent response until Christine Bright, the local ALS Group Representative, met with us. With her help we got to the right people locally as well as gained invaluable information about the disease. All this led to the finest medical experience we have had in our life in the USA when we attended [our friend’s] first ALS Clinic in Fort Myers. This is real health care, and patient-focused.


The husband and wife who wrote the e-mail signed it “Forever grateful.”

What more could you ask for?

For more information about Lee Memorial Health System’s services, click here.



Peace,


Jim Nathan
President, Lee Memorial Health System

 

Jim Nathan,
LMHS President

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